I am happy to report (as is Mommy since she was my night nurse) that I had a great night last night. Although it took me over an hour to fall asleep, I slept from about 9:30 to 5:30. My pulse off alarm didn't go off once! Mommy only had to get up a few times to add water and drain my trach mist machine and to change my feeding.
Once I was awake bright and early, Mommy decided she would try pigtails with me. Since I don't sit still for long periods of time it is not a professional job but it is still pretty cute I think. Daddy really thinks I am a pigtail kind of girl and I think I agree. Now that my hair has grown out a little more my parents finally have some hairstyle options!
Today my parents got to go spend some quality time together while Sarah watched me. They went to lunch and they went and got Daddy some summer clothes. It was another scorcher today. Although my brother Henry loves to sunbathe even he won't stay out too long.
My parents got some information on my upcoming surgery. I have a preop visit on 5/28. They are supposed to get a call on the Friday before my surgery, 5/30 to let them know what time my surgery will be on 6/2. Then, they will need to report to the hospital 1 1/2 hours before the surgery. Since most surgeries tend to be pretty early in the morning, my parents will most likely spend Sunday night in Palo Alto rather then trying to drive there on Monday morning. It will just depend on what time surgery is actually scheduled for. The date is coming fast and we are getting very excited. My parents goal now is just to keep me from getting sick so surgery doesn't have to be cancelled at the last minute. Wish us luck!
Since I am sitting up so well on my own, my parents decided to try a real bath with me for the first time. The easiest way to bathe me was in the kitchen sink. I was definately wary of so much water. Once my parents added a few toys I warmed up a little. Mommy doesn't want me afraid of the water like her so they are going to keep trying.
Peyton Nicole Smith
Peyton Nicole Smith