Wednesday, August 26, 2009
Wednesday, August 26th, 2009
Mommy reintroduced my Shikani French speaking valve to me today. I have a long and not very positive experience with speaking valves. My parents tried for about a year to get me to use the Passey Muir valve. Although they modified it with holes and I would use it a little, I never really liked it. Then it took them a while to order a special speaking valve - the Shikani French. After all the fanfare of waiting for it, I tolerated it a little better but still wasn't interested. In the last few months, though, I have started a lot more vocalizing either by covering my trach or just from the air leak around my trach. Monday while waiting for the otologist Mommy had to shush me because I was so loud with my vocalization. Since I am becoming quite the talker Mommy decided to pull out the Shikani French again and give it another go. Man on man she wasn't prepared for how much I had to say and how loud I was!
You can see a few of the videos above. Not only is my volume increased but with the valve on I was almost constantly vocalizing and my vowels like "o" are much more distinct. Mommy was thrilled. I even was drinking with it on and coughing without freaking out. The only problem? With it on I become booger girl - initially it started with bubbles coming out of my mouth but then it moved up to my nose and I had serious boogers. Mommy thinks most of it was from when I was drinking and didn't quite know what to do with all the secretions. She is hoping that with practice all of this will improve - otherwise the kids at preschool will remember me not as trach girl but as booger girl!
Peyton Nicole Smith