A note from Mommy:
Today she is five. For many reasons 5 is a milestone, one of those being that she starts kindergarten in just a few days. But 5 is a milestone from a medical standpoint as well. When she was just months old we had a goal to have the trach out before she went off to school but that is not to be. And that is okay. Completely and totally okay. I couldn't have said that two years ago but I can now. I know other parents struggle with coming to terms with a trach that is long-standing and potentially life long but I am finally to the point it isn't something I worry about any longer. The trach doesn't make anything about her life less than because she is and will always be greater than the sum of all of her parts.
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