Children's Craniofacial Association is a organization that is dedicated to improving the quality of life for children with craniofacial differences. Nager Syndrome is just one of many that result in craniofacial differences. Each year more than 10,000 babies are born with a craniofacial difference in the United States. I am definately not alone!
September is Craniofacial Acceptance month. This year marks the seventh year CCA will observe September as Craniofacial Acceptance Month across the nation. CCA families, friends, volunteers and related support groups will be widening the circle of acceptance for individuals with facial differences. The goal is to create awareness that beyond the face is a heart and the true person within.
Mommy found out through CCA that the Walker family was holding their third annual Lily's Craniofacial Awareness Dinner and Silent Auction. You can find out more about Lily be watching this clip from KSL.com about a surgery she had last year.
http://www.ksl.com/?nid=148&sid=10261750&autostart=y
Mommy, Daddy and I will be attending Lily's fundraiser to help support CCA and other families whose children have craniofacial differences like me. If you would like to support us, here is more information:
Date: Saturday, September 24th, 2011
Time: 6-9 pm
Location: Pioneer Park
150 South 500 East
Lindon, UT 84042
Tickets are $25 per adult and $10 for children under 10 years old. All proceeds will benefit Children's Craniofacial Association. Please buy tickets ahead of time so they have time to plan for food. Dinner will be served at 6 pm and the silent auction will close promptly at 8 pm.
For more information you can contact Tosha at nursetosha@gmail.com
Peyton Nicole Smith
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